I asked a Cardiologist if he had any terrible stories about telling patients that a painful test they had just done at a different institute would have to be repeated because the systems didn’t exchange records. “Actually, most patients have come to expect it, unfortunately.” The continuing lack of healthcare data interoperability has become so well known that even patient’s standards have fallen. Patients have become accustomed to their health narrative being fractured, understood only in vignettes.
At Story Health, we focus on understanding each patient’s whole story to help specialists adapt the best virtual care plan for that patient…
Poetically it happened while I was visiting the “Body Worlds” exhibit. My mother-in-law called to tell me that my father had just had a stroke. Wooden framed slides of brains that had suffered strokes hung in front of me, coldly illustrating what my father was going through in that moment. My sympathetic nervous system was firing, and I was now asking all the questions…
My father survived his stroke, but the damage was severe. Today, years later, he struggles to walk around the house with support; his recovery has not been easy. …
